A globally coordinated movement on rare diseases working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease, Rare Disease Day (RDD) commenced in 2008.
Since this time, it has played a critical part in building an international rare disease community that is multi-disease, global, and diverse, but united in purpose.
Observed each year on February 28, or 29 in a leap year – the rarest day of the year, RDD provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.